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Picture Of My Son

Hello all. I got my computer up for a little while. I posted a picture of my son. That was Halloween last year he was a pirate. I miss him so much. It hurts so much I have to call his name out loud sometimes. Luis and Jessica have invited yamil and myself to church. We have been going to church for the past week. I really feel good. I hate to say that lossing my son made me realise that I needed Jesus in my life. The pastor says maybe that was what tj was put on this earth for. I know if tj was well I would not be going to church. I would not want to know the Lord.

Yamil got me an engagement ring. We are going to dinner this friday to celebrate. I'm so excited. I'm sad cause I wish tj was here to see this happiness. People say he is looking down on me from heaven, but forget that I want him here with me. I was looking at old pictures and my son was something else. I love him so much!!!

I'm going to look for a full time job because I have a feeling that I'm not going to get offered one at NY Waterway. But oh well. I'll keep ya'll posted

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Bitter as hell
how can i give thanks? this whole week has been crappy. first i lose my son, then out of nowhere the lcd tv blows then our stove breaks. i know i can get a new tv and a new stove, but i cant get tj back. we went for the viewing of tj yesterday. he just looked like he was sleeping. like he was going to wake up and ask me for cereal or scooby snacks (gummy candy) like he did every morning. the swelling was no longer there. he looks so peacful. im pretty sure he is. i didnt want to leave him there. i wanted to pick him up and run outta there.

my dad is coming up from Ga with my step mom and step sister. and my play sister shanice is coming from boston. i feel bad cause i dont have extra towels...lol dang im ghetto i have to tell them to bring there own towels. but whatever. to be honest i dont want anyone here. i just want to be left ALONE. i want to have it quiet. i feel like screaming and punching.

i should be sleeping and resting but lately ive been waking up early as heck. the funeral is tomorrow. my cousin asked if i was going to have something after the funeral...no cause i want to be left alone...FUCKIN ALONE DAMNIT!!! why dont people understand that???

ill keep you posted.
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LEAVE ME ALONE
im just tired of getting the "how you doing?" calls. how the hell do you think im doing? my mom calls me everyday like thats doing me a favor. all that does is aggravate me. here i am trying to get my mind off of things and here she is calling me to ask how i am today...how does she think im doing. the only family memeber that understands about the phone calls is my dad. he knows me like a book.

anyway i just lost all intrest in talking. ill keep you guys posted.
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thank you everyone
i just want to say Thank You so very much. My love for TJ is just so amazing. i was there for his first breath and i was there for his last.

between 4:30am-5am me and yamil woke up to tj grunting. he was fighting the nurse because his nose was bleeding and he didnt want to be bothered. so yamil and i got up and spoke to tj to try to calm down so she could whip his nose. sinse his face was so swollen on the right side we moved him to his left side. his breathing seemed the same but it kept geting slower and slower. i was holding his hand, well he was holding my finger then he took his last breath. i couldnt believe it. i just looked at his cheast. i told yamil and he ran and got the nurse. she came in with the other nurses and they listened to his heart and confermed he had passed.

its funny how everythin happened. friday we went to make pre funeral arrangments, then when we went to the hospital my friends luis and jessica came by and then their pastor came and they presented tj to God. the pastor presnted us to God and washed us of all our sins. then all this happened this morning. so things happen for a reason because the pastor was going to come this morning but he didnt want to wait.

the funeral is friday the 23rd. ill give more on the matter. ill keep you posted.
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it hurts so bad
i cant explain how iam feeling. i look at my son and i just cant stop thinking about all the things that mad me laugh. i also keep thinking about his last breath. how will i take it? what will i do? what can i do? the doctor asked me if i wanted to resesitate (sp) him after he passes. i told him no i dont because what would be the point? they have to keep giving him morphine for the pain. hearing him say Mommy for the first time in 3 or 4 days was so damn heartbreaking all i could do was smile and say i love u. his hearing is going. i have to get close to his ear and speak. he understands me because he slightly shakes his head yes or no. the swelling is still there. they gave him a oxygen mask to wear to help his breathing.

yaml and i are going to stay the weekend with tj. we were going to spend the weekend together to celebrate our engagement but i told him that we have to postpone it until a month or two. i cant concentrate on anything. im suprised im not short money at work. i had to email one of the head ladies in charge at home office to let her know what was going on with my son. she hasnt gotten back to me yet. so ill wait on that.

im going to make pre funeral arraingments today. so im really not prepared for that. i do and i dont want to do it alone but its something i have to do.

well let me get back to work and try to stop thinking about things. ill keep yall posted.
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Going Home to Rest
Well i spoke to Dr. Bekele today and he was asking me what i think should be done. should he stay in the hospital or go to the Hospice unit or go home. To be honest i want to take him home. Frankly the Dr. said the same stuff he is on here at the hospital is the same stuff he can be on at home. they are going to sit down with my mother and explain to her that it will be better at home. because she seems to think she has more of a say so with what goes on with tj. so they are going to tell her he is going home. the cancer is spreading faster this sat when i saw him his face was a lil swollen, now his right eye is completly swollen shut and his neck area is swollen. they think that he may stop breathing because of that.

im going to set up a metting with a funeral director that way i dont have to worry about it later. everything will be taken care of. i have to call tjs life insurance. im really getting tired of everyone asking how im doing. they have to know i feel like shit. they have to know that i dont feel good. why even ask, but at the same time i expect people to ask. i guess if they didnt i would wonder why they didnt ask.

Yamil was speaking with his boss about taking a leave of absense from work. so he can be with us. they ha e foundations that will help us with bills. but i want to keep busy if i sit still ill go crazy. i only work 4 hr shifts anyway. im going to have to tell Fanta that the monday nights are out of the question. because if something happens with tj im going to just leave the job customers and all.

but they are thinking of letting him go home next week maybe tuesday. but ill keep you posted.
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Any day now
i got a call from the doctor. i called him back and he was telling me that tj is really sick. we are going to sit down and talk about staying in the hospital or going to Hospice. i dont think they are going to send him home. i told "aunt gina" the aunt of Ky (the lil boy who passed away last year around this same time) and she gave me information for funeral homes. i still dont know what to do? im still in denial. i just cant imagine lossing my baby boy. how can i move on? how can i have more children? how???

ill keep yall posted.
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Visitors
well i got a text from my play sister Shanice. shes coming to visit me a tj with her mom today. i went home yesterday to get some rest and yamil is there at the hospital. im going to go and see them. im so excited. tj was not in a good mood yesterday. hes eye looks like its going to come out of its socket. i guess thats the cancer?!? in a way im excited to bring him home but im scared as hell. i told all the doctors this.

well let me finish watching some tv and relax a bit. i just cant stop crying. i just cant.

ill keep you posted.
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Still don't know what to do?

Well, I got here to the hospital today and the doctor told me that tj has a infection in his intestines. So now they are going to put him on antibiotics. There was a spot on his leg that was hurting him so they did a scan and it's the cancer. So they are going to radiate that part of his leg to get rid of the pain. The doctor said that wasn't the only part where there was cancer. I noticed the lumps on his head. The doctor basically said that this chemo didn't do much either. So radiation is the way to go now until she talks to her team. So I'll keep ya'll posted on that.

They actually gave my son some morphine and he sparked right up so they are going to give him that every 3 hours or as needed. He was nice and talking to the nurse. So that's a good sign. They are going to do radiation to the leg for the next 4 days and then we can go home that next thursday. They have to put a feeding tube in his nose to his throat so he can eat and get his meds and I don't have to worry about him getting upset that he has to orally take his meds.

Im just really scared of everything that is happening. When he does come home we are going to do the shopping spree. Then relax at home and just make him happy. I'm really scared I can't stop crying. I think I'm going to alcohol again. I don't want that but it's seems that way.

Well let me go I just gave myself a headache. I'll keep ya'll posted.

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Bad Mood!

Well I had to work this morning because someone decided to take their vacation so Fanta (My boss) had to go to another station. I stayed until 11am to give Jerry (Co-worker) a break. I was going to meet Yamil at the mall but I wasn't planning on staying until 11am so I told him I will see him at the hospital later. He left his psp at work and someone stole it. I guess that's one more sign that he needs to give up the games. But oh well. He got me the Silent Hill Origins game. Look at me saying he needs to give up the games and I play video games too. But hell I know when to put life over video games. But he's learning.

I got to the hospital today and tj was in a bad mood. Im trying to keep my spirits up but it's hard when I go to hug tj he tells me to leave him alone. He's just not the same even with the chemo and radiation he still is sluggish and just not himself. He usually plays video games for hours now I let him play my psp and he plays for like an hour and then goes to sleep. He doesn't want me to look at him or touch him. I just don't know how to handle this. I try to keep myself busy and let him know that I'm around and that I love him and I kiss him even though he pushes me away.

I spoke to the doctor yesterday and she said the only thing that is holding tj back from going home is him eatting. He doesn't have a taste for anything. They have him on TPN(liquid food nutrition). But the doctor doesn't want him to go home with that. I flat out told her that I'm scared to take him home, because I don't want to not now if he is going to pass away in pain. So she brung in a Hospice nurse to explain to me about their way to manage pain. They have a nurse come to my house twice a week and they are available 24 hours a day 7 days a week. I'm just so scared.

Last night they had a thing for the parents where they had a massage chair and they gave us massages. It was really nice I enjoyed that. I'm kinda happy cause I have tomorrow off and I get to go home cause Yamil is spending the night. I get to kinda sleep late. I have to be here at the hospital before 12 because my mom has to go to work. So it's not that big of a break.

Anyway let me get going there are some kids that need to use the computer. I'll keep ya'll posted.

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Just feel like giving up.

"You're so strong." That's what i hear all the time. What people don't know is that I just want to give up. I really don't like my mother. She thinks she knows everything about everything. I just can't stand to talk to her about anything. She makes it seem like the choice is mine but she always makes it a point to tell me what to do in a discrete way. Most of the time I aprechiate what she does for TJ, but at the same time it's like if I had a choice and wasn't so scared of anyone else watching tj I would let someone else watch him. Lately I've been mean but I just want to be left ALONE!!! I just can't get a chance to myself. I just want to be ALONE to my thoughts where no one calls me or texts me. ALONE DAMNIT!!!

My ex keeps texting me. I just wish he would get the hint already. He is causing me stress that I don't need. He wants to be my friend...I understand that but I can't deal with him right now. Everytime we have the talk he ends up being more annoying than a friend. I tell people to leave me alone and they keep talking. Then when I say "Shut the F*CK UP!!!" Then I'm the bad one. I'm going to get a text saying "I just want to be your friend if I dont hear from you then I won't text you." Then I get at peace with everything cause I don't have to read these text messages every 10 minutes. And guess what he texts me. What the hell happened to "If I don't hear from you I won't text you." That is the most annoying thing a "friend" can do especially going through this with my son. I don't know what to do. I want to change my number so f*ckin bad but now that tj is sick I don't have the time to call all these family and friends to tell them my new number. So what do I do? I didn't the right thing by saying I'm moving on with my life and this isn't the right time basically for us to be friends.

What the hell do I do???

I'll keep you posted.

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Does this make sene?

Ok I'm much better now. I know what I want out of life and I'm going to try hard to get it...Not wait too late to try and get it when it's gone. I think I'm going to be happy with whatever decisions I make in life. I'm getting married in like 2 weeks. People say it's too fast but what's too fast? It's my life and my choice. I'm not running around telling people what to do in their lives. To each is own.

I'm just kind of sad because TJ now has new lumps forming on his head (from the cancer). Which isn't good. The tumor is in his brain fluid. I know this sounds mean of me and it's like I'm giving up hope. But I just can't stand to see my son like this. He is in pain and he is just not himself. I know people say he's a fighter and I do not doubt that at all. I know that doctors tell me that they are doing everything they can to make his life longer so we can have more time. But what time is he having. Always in pain! I've come to grips that I may lose my son. As hard as it may seem. I was talking with my boss the other day about this lady who had two sons with a illness that could not be cured and they were in really bad pain. One day she went to the hospital and she took out a gun and shot her two sons dead. I mean I'm not going to do that to my son but I can really understand what she was going through. She condemed her life to hell so that her sons will not suffer anymore. Please do not think that I am crazy, but like I said it will be selfish of me to want to keep my son around because I want him around. Does that make sense to anyone?

But I will keep you posted.

 Shante'

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All the things!
out of all the things i could be worried about i dont think i should be worried about a grown mans feelings. i have my son and myself to worry about. i basically told my ex boyfriend/friend that i cant see him anymore because i have a man now and i dont want to make excuses when i see my ex. im trying to make my life as normal as possible being that i may lose my son to cancer. it just hurts to think that my ex now whats to make the effort to spend time with tj and me, but when we were together he made none until the last couple of months we were together. my son has been in the hospital before and my ex never asked to come see him but he did ask to meet me at a hotel. his thing was how i hated being home and at the hospital and needed a break. and i never did speak my mind then about meeting him at a hotel. even now i never spoke my mind about him coming to see my son in the hospital but he is making the effort now. now that we are not together. i have no clue why that is? im pretty sure if you read his blog he wont put that he never made the effort until AFTER we broke up. he puts all the stuff about him missing me but when we were together we rarely went on dates or out for that matter until it was getting close to us breaking up. im sure he wont write that though.

yamil did show up on time that day. we had a talk about the way he acts with the games. he gave away his Xbox because he thought that would be the right thing to do. hes actually stayed twice here at the hosital with tj. he said he was nervous that tj would cry for me but he didnt.

tj gets to go on his shopping spree soon. the Make a Wish Foundation gave him $1000 to go shopping at toys r us. so we are going to have a ball.

anyway ill keep you posted.
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